Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I went to my family doctor plus others for 7 months to question a lymph node swollen the size of my thumb under my left jaw. I finally got a referral to a plastic surgeon because nobody else would remove it due to all the nerves in the neck and face. The plastic surgeon wanted and ENT workup for a second opinion and as luck had it, my wife was there, too. I asked her what she thought, she said...take it out. I said, there's your second opinion. Everything fell in place and two days later I woke up...with the darn thing still in there. It was so puss-filled and infected the doctor thought it was tuberculosis so he took some out and stitched me back up because it was hard to see where the chain really ended. I went home Friday thinking I was going to prepare myself for a year of antibiotic cocktails to treat TB. Monday I got a phone call that I had metastatic SCC in the lymph node. I have now learned that 90% of the time you have a swollen lymph node for very long, it is cancer. I lived through the treatment and 6 months out...cancer free. The ENT did not do the neck dissection because he believes my stage of cancer does not indicate an automatic neck dissection and the operation is my last defense because of the amount of radiation I had. Is a second opinion worthwhile? You bet it is and I wish I had pushed harder for 7 months than I did, even though the cancer is probably 1-2 years building in my body. I got three opinions before the treatment and one told me he uses my doctor for his second opinions and one said he could take care of it on an outpatient visit. We'll never know which one was right but I know which one I believed in!
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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