Thanks everyone for your support and advice. I spoke with one of the members last night, Jerry, on the phone and that was very helpful. Just want to be prepared for everything we might be facing. Steve is having a hard time facing up to this disease right now so I am doing all of the leg work researching and finding a good support group such as yourselves, to get us as ready for the battle as we can. I don't mind though, because I would rather he save his strength for his treatments. Although I do think it is important to get him as mentally prepared as I can to know what he's up against. His appointment with the tumor board is Monday and the surgery is scheduled for next Thursday. Luckily his mom is now able to fly in to sit with me and be there for him when he wakes up. I was getting concerned that I might be waiting alone and that I might loose it. I talked to her last night and it was a real comfort to be able to express my feelings and concerns. I am going to be the long term caregiver though, so I'm sure I will be using the forum frequently to share my experiences and Steve's and to continue learning about all of your challenges. Thanks again.

Michelle


Michelle, wife & caregiver of Steve/T1N1M0 right lateral tongue cancer/Surgery 8-3-06/Started treatment 9-13-06 -- IMRT x30 Plus 3 sessions carboplatin