 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | Hydrangea, make sure you take notes at the appointment, it can be overwhelming and you may forget what the doctor tells you.
You may want to know about side effects, weight loss, skin breakdown, etc. have a look at the OCF site and write down some of your questions so you’ll remember to ask them. Of course, it does not mean that you have only one chance to ask. There will be subsequent appointments. In addition, you can always ask the nurses and anyone else on the team. You may also want to know if you have access to a Help Line after hours or on weekends. I personally used the Help Line several times.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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