So sorry to hear that your so frightened. As some very smart person told me... “It’s not cancer till they say it is”. Your doing the right thing to get it biopsied. That’s the only way to know for sure. Oral cancer is not a death sentence as you can well read on this site. There are many survivors and the earlier it’s caught the better the outcome. I can relate to your fear as we all have felt that and been there maybe more times than once. People on the forum here are here to support you when you need us. So sorry you didn’t get a response the first time. Life and treatments get in the way and we can’t get to this site as often as we would like. Best of luck with your biopsy and please keep us updated. We’re here for you.


SSC Lt sublingual tongue; Age 62
Positive biopsy 20June2019
Staging done 2 Jul : Stage 1
Quit smoking 15 years ago; not a drinker; no HPV
Pet/ CT 6Jul2019 : Negative. Not even the Lt tongue lit up.
Partial Glossectomy 22Jul2019