Hi Mokie, Don't look at statistics. My first team told me that I would need my entire tongue removed (total glossectomy) where I'll need a permament tracheostomy and permanent PEG, plus rads. Even after all of that gruelling treatment my 5 year life expectancy was only 30%. Then they asked me if I wanted to pursue the treatment. I'm not the average patient and so I will not accept the average statistics.


Please get yourself some therapy. I'm about to start mine. Having someone who isn't close to you that you can be so open with will help you massively.

My pain team seem to be very different to the USA as they have told me they are going to gove me as much as they can to make me as comfortable as possible. I've a meeting with them tomorrow to catch up over my current pain plan and discuss what they wish to give me during and after surgery. I like my team very much.