My experience with radiation was that I was able to drive myself to radiation throughout my 33 treatments. Radiation doesn't hurt while your getting it, but being on a table and completely restrained can be very unnerving, but it generally only lasted like 10 minutes. I had to wear a mouth prosthesis that propped my mouth open along with the mask that completely immobilizes your face. It's not fun but, it's over in about 2.5 songs. I was in and out every day in about 30 minutes total.

As the weeks went by I generally felt more tired, but not so much that I wasn't able to still keep up on things around the house. By about week 3 of radiation, my neck did end up getting red and needed Eucerin to be moisturized and the inside of my mouth did develop sores and at one point the entire inside of my mouth 'shedded.' You would think that was a big deal but by that point, there wasn't much taste left so it's not like I was enjoying food or anything. The weeks AFTER radiation was the worst for me. Everyone was basically like, oh the week after will suck then there should be an upswing but no, not with me. I maintained my weight up until the end of radiation then for 4 weeks straight I lost weight. By then there was no taste and the fatigue was so bad I barely was awake or had the energy to even attempt to eat. The oxycodone and morphine contributed to my sleepiness but I needed it to get through the residual pain in my throat. Not feeling like myself and not participating in life made for a dreary existence for that solid month and then some. The good part is it's all temporary, but when you're in the thick of it, it's hard to be patient for your body to get back to normal.

Last edited by VirgoMomof3Boys; 04-03-2019 08:53 PM.

Laura Age 40
Tongue lesion on left side grew and was hurting in mid-August
Dx as squamous cell carcinoma on 9.18.18
Left Neck Dissection and tongue surgery, lost a fourth of my tongue on 10.1.18, tumor had grown to a T3
Margins were clear except front section of tongue margin had three stray cancer cells that were not in the tumor
Additional surgery 10.18.18 to remove another cm near where the stray cells were found
33 radiation treatments from Nov 2018 through Jan 2019