Should the feeding tube be painful? (Christine or somebody?) Mine mostly wasn't, and when it did hurt badly, we determined it had to be replaced ... it had mis-seated itself inside or something. (And that pain was at an I'm-gonna-die level.) It's not comfortable, but I'm not sure painful is the word either. I know we all react differently, but that makes me nervous. Though the constipation makes sense. To this day, that's where I hurt the most when I have tummy issues, and I'm all healed up.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery