Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | Should the feeding tube be painful? (Christine or somebody?) Mine mostly wasn't, and when it did hurt badly, we determined it had to be replaced ... it had mis-seated itself inside or something. (And that pain was at an I'm-gonna-die level.) It's not comfortable, but I'm not sure painful is the word either. I know we all react differently, but that makes me nervous. Though the constipation makes sense. To this day, that's where I hurt the most when I have tummy issues, and I'm all healed up.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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