| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Your father is at the half way point where most patients begin to notice the side effects. For mouth sores, your father should be rinsing his mouth at least 4x a day with one cup warm water, 1 tsp baking soda and 1 tsp salt. The salt will probably burn like heck. Its ok to cut it back to 1/2 tsp or even less. Just try to get some salt into the mixture. Swish it around for 30 seconds or longer if he can tolerate it and spit it out. Over the years Ive heard from quite a few members who have touted the wonders of using manuka honey on their mouth sores. Im sorry but I cant remember which number is the best for the manuka honey but it was discussed a good 5 years ago, maybe longer.
Pay close attention to your fathers intake. Every single day he must take in at the very least 2500 calories and 48-64 oz of water. Sounds like he is doing great with his water consumption. Weight loss is an indicator that your father isnt getting enough calories. Doctors prefer to have their patients maintain their original weight when going thru treatments, even those who have extra weight they could easily afford to lose. Its very difficult to eat when you have a sore throat and mouth sores.
Another thing to get is a prescription from his doc for magic mouthwash (MM). Theres several variations of MM. The combo I had was malox, benedryl and lidocaine. Your father would swish this around in his mouth and spit it out before trying to eat. It will numb his mouth long enough for him to eat without so much pain. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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PNI present, what to do next?
| son_of_patient | 04-11-2018 03:30 PM |
Re: PNI present, what to do next?
| PaulB | 04-12-2018 02:01 AM |
Re: PNI present, what to do next?
| son_of_patient | 04-12-2018 02:48 PM |
Re: PNI present, what to do next?
| PaulB | 04-13-2018 05:13 AM |
Re: PNI present, what to do next?
| son_of_patient | 04-14-2018 04:58 AM |
Re: PNI present, what to do next?
| PaulB | 04-15-2018 12:19 AM |
Re: PNI present, what to do next?
| son_of_patient | 04-15-2018 06:13 AM |
Re: PNI present, what to do next?
| tlc356 | 04-15-2018 12:31 PM |
Re: PNI present, what to do next?
| PaulB | 04-15-2018 03:02 PM |
Re: PNI present, what to do next?
| gmcraft | 04-15-2018 04:48 PM |
Re: PNI present, what to do next?
| son_of_patient | 04-17-2018 03:26 PM |
Re: PNI present, what to do next?
| PaulB | 04-17-2018 06:09 PM |
Re: PNI present, what to do next?
| ChristineB | 04-20-2018 03:19 AM |
Re: PNI present, what to do next?
| son_of_patient | 04-21-2018 11:15 AM |
Re: PNI present, what to do next?
| son_of_patient | 05-23-2018 03:48 AM |
Re: PNI present, what to do next?
| ChristineB | 05-25-2018 03:18 AM |
Re: PNI present, what to do next?
| son_of_patient | 12-24-2018 09:20 AM |
Re: PNI present, what to do next?
| gmcraft | 12-24-2018 02:18 PM |
Re: PNI present, what to do next?
| son_of_patient | 12-25-2018 04:50 AM |
Re: PNI present, what to do next?
| gmcraft | 12-25-2018 07:10 PM |
Re: PNI present, what to do next?
| son_of_patient | 06-13-2019 05:44 AM |
Re: PNI present, what to do next?
| PaulB | 06-13-2019 11:45 PM |
Re: PNI present, what to do next?
| son_of_patient | 06-15-2019 02:11 PM |
Re: PNI present, what to do next?
| PaulB | 06-15-2019 08:10 PM | |
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