| Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Hi son of patient, i’m sorry for the delay as i got back home at 7pm, after a long day, but it was worth it since my PET/CT was free of cancer!
To answer your two questions:
1. All of my PNI recurrences was found after the resection found upon further analyses of the tumor biopsy, so it wasn’t known before or during my surgery. They were found by the pathologist later on. My doctor, a radiation oncologist, oversaw the head and neck cancer departments, and co-chaired head and neck surgery, who suggested the treatment plan for the PNI I agreed upon, twice. My first PNI started in one hospital, quite reputable, but my surgeon left the practice, and the treatment suggestions was kind of minimal, I thoight. I quickly interviewed several more places, and decided to go with one particular head and neck radiation oncologist, and his team, due to his reputation i had read about, and believe it was the best choise I made. I’m at another cancer now, but came with the my surgeon at my last hospital.
2. I hate to admit it, but i have debilitating side effects for 9 years, most from the Induction Chemo in 2009, but all the recurrences and treatments following added to my issues. I don’t think much about it now, initially i did, and accepted certain lifestlyle changes, and do what i can.
I hope this helps, and ask any time!
Paul
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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Entire Thread
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PNI present, what to do next?
| son_of_patient | 04-11-2018 03:30 PM |
Re: PNI present, what to do next?
| PaulB | 04-12-2018 02:01 AM |
Re: PNI present, what to do next?
| son_of_patient | 04-12-2018 02:48 PM |
Re: PNI present, what to do next?
| PaulB | 04-13-2018 05:13 AM |
Re: PNI present, what to do next?
| son_of_patient | 04-14-2018 04:58 AM |
Re: PNI present, what to do next?
| PaulB | 04-15-2018 12:19 AM |
Re: PNI present, what to do next?
| son_of_patient | 04-15-2018 06:13 AM |
Re: PNI present, what to do next?
| tlc356 | 04-15-2018 12:31 PM |
Re: PNI present, what to do next?
| PaulB | 04-15-2018 03:02 PM |
Re: PNI present, what to do next?
| gmcraft | 04-15-2018 04:48 PM |
Re: PNI present, what to do next?
| son_of_patient | 04-17-2018 03:26 PM |
Re: PNI present, what to do next?
| PaulB | 04-17-2018 06:09 PM |
Re: PNI present, what to do next?
| ChristineB | 04-20-2018 03:19 AM |
Re: PNI present, what to do next?
| son_of_patient | 04-21-2018 11:15 AM |
Re: PNI present, what to do next?
| son_of_patient | 05-23-2018 03:48 AM |
Re: PNI present, what to do next?
| ChristineB | 05-25-2018 03:18 AM |
Re: PNI present, what to do next?
| son_of_patient | 12-24-2018 09:20 AM |
Re: PNI present, what to do next?
| gmcraft | 12-24-2018 02:18 PM |
Re: PNI present, what to do next?
| son_of_patient | 12-25-2018 04:50 AM |
Re: PNI present, what to do next?
| gmcraft | 12-25-2018 07:10 PM |
Re: PNI present, what to do next?
| son_of_patient | 06-13-2019 05:44 AM |
Re: PNI present, what to do next?
| PaulB | 06-13-2019 11:45 PM |
Re: PNI present, what to do next?
| son_of_patient | 06-15-2019 02:11 PM |
Re: PNI present, what to do next?
| PaulB | 06-15-2019 08:10 PM | |
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