Hi all

I’m a 29 yo married female and out of the blue discovered that my mother has adenoid cystic carcinoma and my understanding is that it’s quite rare. I’m struggling to find in depth information. I’d like to understand this type of cancer a little bit more, can anyone help?

Just wanted to reach out and speak to people in the same situation. I’ve never used a forum before so not sure exactly what I’m doing.

She’s going in for a MRI and pet (?) scan tomorrow then another appointment next week with the surgeon.

Was told today that it’s incurable and they recommend to operate instead of undergoing radiation therapy.

Has anyone else experienced this situation? Just would like a better understanding of it. Struggling to cope with being told it’s incurable

An.