Welcome to OCF, An! Im sorry you are going thru this with your mother! We'll do our best to help you with info and support.

We have had members diagnosed with ACC over the years. Im sorry, I cant think of anyone recently but that doesnt mean we dont have someone to help you. Heres a couple links with info from our main OCF site.

Im not quite sure what other countries have thats comparable to the US's comprehensive cancer center (CCC) where they use a team based approach with all the doctors and specialists working together to create a treatment plan. The best thing for rare cancers would be to find a large teaching type hospital where they would have the most experience with rare cancers.

One thing I wondered about your post is your mother is given treatment options but was given a terminal diagnosis. Usually a terminal diagnosis comes without any further curative attempts. Im sure your mother would find it very helpful to take someone along to her appointments to take notes. Too often we hear some pretty scary news and thats all we are able to absorb at that time.

Main OCF Site...Understanding

Main OCF Site... Rare Cancers, ACC