Hi

Thank you for taking the time. It’s hard to deal with the news and understand exactly what it is. When they operate, so they remove nerves? Apparently my mum has 3 nerves that have the cancer growing on them and almost the whole right side of her face is numb. It started when her eye stopped tearing and the GP she saw told her it was nothing just menopause. This happened for a year until the numbness started and she went to seek another opinion. Thats how we discovered the tumours as the second doctor requested an MRI.

We are from Australia and she is seeking advice and treatment from the Peter McCallum centre? We called a US clinic and they advised Peter McCallum is apparently a sister clinic?

I also want to know how to support my mum through this and make her feel as if her life is as normal as possible??

Thanks

My mum has just been diagnosed with ACC. Treatment has yet to start as we’re still completing required scans. Surgery has been recommended. Would like to learn more about ACC and how to help her through this.