| Joined: Apr 2017 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Apr 2017 Posts: 61 | Quick update: or i hope it turns out quick. I am on my last radiation treatment on Tuesday. Then i will have made it, through one of the most difficult things ive ever experienced.
For informative purposes, i wont sugar coat this. The mouth,gum, and tongue. Sores/blisters have been plaguing my mouth for weeks. Now i can feel them and see them. They are painful and burn, to alleviate the pain i do a number of things. I use magic mouthwash, 50mg fentanyl patch, 2 benadryl, and a 10mg/325mg percoset. At this point in treatment, i sleep a lot. I eat somewhat. Right now it is just water and a couple of sips of boost. I know it HAS to be more, but frankly the burning tongue and my upper palate is so sore and tender that i cry like a 2 year old. I tried soft, jello, creamy soups, clear broth, any kind of soft food. Everything hurts. Thankfully, my team has at least given me 2 hydrations. Ive gotten refills on prescription, and made sure everything was in order, before im finished with the radiation and oncology team. But i am hanging in there. This will not stop me. Ive went from 267lbs from the beginning of treatment to 228 lbs. Most everyone says that is great. You lost all that weight! I have to remind them that Cancer is the worst diet EVER!
So to all that have gone through this and those to come i wish you all peace and comfort. May the Lord walk with you through your troubled times.
04/21/17 Biopsy at ENT 04/25/17 Biopsy result SCC on left side tongue 04/27/17 CT Scans--shows shallow tumor 05/02/17 Pre-op 05/03/17 Surgery to remove tumor 05/08/17 Cancer still present 05/10/17 2nd surgery- 06/05/17 PET on 6th, RADS start on 06/20/17 07/11/17 Halfway point! 08/01/17 Last treatment 11/1/17 Cancer is back 11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft. | | |
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Just started RADS, question.
| WendyinGa | 06-21-2017 11:30 PM |
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| PaulB | 06-22-2017 12:10 AM |
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| WendyinGa | 06-22-2017 02:16 AM |
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| ChristineB | 06-22-2017 01:48 AM |
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| WendyinGa | 06-22-2017 02:14 AM |
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| MrsW | 06-22-2017 07:37 PM |
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| WendyinGa | 06-25-2017 09:20 PM |
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| ChristineB | 06-26-2017 02:45 AM |
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| WendyinGa | 06-27-2017 01:02 AM |
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| ChristineB | 06-27-2017 02:37 AM |
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| Stef H | 06-28-2017 12:55 AM |
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| gmcraft | 06-28-2017 01:18 PM |
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| Stef H | 06-28-2017 05:59 PM |
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| WendyinGa | 06-30-2017 05:10 PM |
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| ChristineB | 07-01-2017 01:00 AM |
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| Stef H | 07-01-2017 12:58 PM |
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| WendyinGa | 07-06-2017 01:31 AM |
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| sooner | 07-06-2017 02:52 AM |
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| Stef H | 07-06-2017 07:04 AM |
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| Pandora99 | 07-10-2017 01:41 AM |
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| WendyinGa | 07-10-2017 03:32 AM |
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| ChristineB | 07-10-2017 12:43 PM |
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| gmcraft | 07-10-2017 01:59 PM |
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| WendyinGa | 07-11-2017 11:20 PM |
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| ChristineB | 07-12-2017 01:04 AM |
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| WendyinGa | 07-12-2017 08:30 AM |
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| WendyinGa | 07-12-2017 08:33 AM |
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| travelottie | 07-12-2017 11:57 AM |
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| WendyinGa | 07-17-2017 10:18 PM |
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| sooner | 07-17-2017 10:40 PM |
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| WendyinGa | 07-18-2017 03:23 AM |
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| WendyinGa | 07-19-2017 12:06 AM |
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| sooner | 07-19-2017 12:32 AM |
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| gmcraft | 07-19-2017 01:15 AM |
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| ChristineB | 07-19-2017 01:31 AM |
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| WendyinGa | 07-19-2017 04:01 AM |
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| ChristineB | 07-19-2017 10:33 AM |
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| travelottie | 07-19-2017 11:19 AM |
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| sooner | 07-19-2017 01:30 PM |
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| WendyinGa | 07-19-2017 01:59 PM |
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| ChristineB | 07-19-2017 02:01 PM |
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| WendyinGa | 08-01-2017 04:19 AM |
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| sooner | 08-01-2017 10:59 AM |
Re: Just started RADS, question.
| ChristineB | 08-02-2017 12:57 AM | |
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