Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Its great to hear for you!!! Im sorry you have had some difficulties with your recovery. When doing rads, it makes patients' immune systems low where they cant fight off even minor infections. Im sure your blood work white counts are still very low, making you susceptible to pick up all kinds of illnesses . A complete recovery takes a LONG time! It cant be rushed. Just remember... no patient ever can bounce back as quickly as they think they should.
If you have lost weight then you are not taking in enough calories. This is something most OC patients struggle with due to radiation to the mouth/throat areas affects our capability to eat and swallow. Every single day you should push yourself to take in the daily minimums of 2500 calories and 48-64 oz of water. Since you said you had a big weight loss, you need to increase your intake over that amount. Even if taking in 3500 calories daily you probably would not start to regain any weight for many months. For your own good heath and to make your recovery go smoothly, I would say to push to take in as much as possible over 3000 calories every single day until you hit your one year post rads milestone. It took me about 6 or 7 years after finishing my rads until I was able to gain any weight. Thats with some days taking in well over 5000 calories, sometimes even over 7000 calories daily. I would make and drink huge chocolate peanut butter milkshakes every day. Im not sure if your country has the same items so you could make these? Here in the US we have many different nutritional drinks available in grocery stores and pharmacies. Its even available to purchase online, no prescription is necessary. The Boost very high calorie is one of the most calorie dense drinks available with 530 calories in 8 oz. Drink a few of these per day and it will greatly help you to recover.
Not all doctors send their patients for PET scans. Some doctors avoid post treatment scans of all kinds to keep their patients from getting any extra radiation.
Best wishes with your continued recovery! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |