Gary
Patient Advocate (300+ posts)
Member # 457

posted January 20, 2006 05:03 PM

Frankie the "metal mouth could be the chemo as well, but few here have been able to tolerate Amofostine. You're going to lose your sense of taste from either the radiation and/or chemo temporarily.

Zofran is one of the best antinausea drugs, I used compazine suppositories when I was throwing up too much to keep pills down (and I just had Cisplatin). I also smelled like a chemical waste dump for a few weeks after the chemo was over.

If you are getting IMRT I would ask them directly, what the amount of benefit you will achieve from Amofostine. I didn't have it and have quite well recovered salivary function. Standard radiation (XRT) is another matter.

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Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm tumor, right tonsil, Stage III/IV, T3N0M0
Tx 1/28/03 through 3/19/03, Cisplatin Chemo x2, IMRT x33(81cGy)
Posts: 1582 | From: San Francisco CA | Registered: Nov 2002 | IP: Logged

Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.