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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Im very sorry you have a need for our group. But, I really hope you do not need us. Im glad to see at this time you were not diagnosed with oral cancer. Reading your post, I fear you are getting way ahead of yourself by planning your funeral and worrying about being disfigured. You do not have a diagnosis of anything yet so do yourself a big favor and relax! Its unproductive to create unneeded stress, Im sure your regular day to day life is stressful enough without adding more to it. Remember, you are in control of your feelings and thoughts. Think positive until you are told otherwise by results of a biopsy.
After stopping using chewing tobacco, the "spot" may take a while to heal. No one can know for certain if the spot will disappear or if it will still be there after being tobacco free for 2 weeks. The saying we have is... any sore a person has inside their mouth that does not heal itself within 2 weeks should be checked by a professional. By a professional, I mean an ENT who specializes in treating oral cancer patients, not the type who primarily puts tubes in kids ears.
Our site is made up of patients/survivors and caregivers for those who have been diagnosed with oral cancer. We have all been thru the mental anguish of not knowing prior to being diagnosed. Ive been with OCF for almost 10 years, in that time Ive seen alot. Ive seen hundreds of people come to our site who were "100% positive" they had oral cancer but it turned out to be something else. I suggest seeking out a qualified ENT and taking it logically step by step to determine exactly what your spot is. It could be any number of things besides oral cancer. I hope your spot is something that is easily treated. Im also hoping you do not have a need to be here and can go back to happily living your life with your family.
Good luck and best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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