Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I had both a port and feeding tube. Yes, those things can be painful at first then just uncomfortable the next couple days. After about the first week they kinda settle and its just a bit strangle having them there. Try to think of them as both a temporary tool to help you to get thru this. Unfortunately its alot to absorb and not enough follow up instruction with the tube. If you need help with it I can give you all kinds of tips.
Chemo and rads for many patients isnt easy. The hardest thing is to keep your intake high enough. If you can start now getting used to taking in at least 2500 calories and 48-64 oz of water daily then you will be ahead of the game when you start. Your doc can also write an open prescription for you to get extra hydration in the chemo lab. It will instantly perk you right up when you know you are not meeting your daily water goals. Some patients will make it a habit to go a few times a week. I know the calories sound excessive and as a young person you may be hesitant to gain weight. If you are slim, gaining a few pounds going into this would be a good idea. Your body is going thru incredible changes right now and burning up calories much faster than normal trying to fight off the cancer and rebuild itself. This is why its so important to keep your intake at least 2500 calories daily, more is even better and will make the next few weeks/months much easier to get past. This will need to continue until at the very least you hit the first year after finishing rads. Also, even with a feeding tube its very important to keep swallowing water every single day even if your throat is sore.
We are here to lean on and we will help get you thru everything.
Best wishes with everything!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |