Hello Cancer Peeps:

I am finding little information about Lymphedema on the forum. Am I one of the unlucky ones who has significant Lymphedema issues.

My neck and throat fill with fluid. My throat feels very restricted. Sometimes it feels like I won't be able to breathe. The constriction of my throat makes swallowing difficult. Lymphedema plus no taste plus no saliva plus no appetite makes eating next to impossible.

I am 14 weeks from the end of radiation.

I have been going to physical therapy for ten weeks. The first four weeks I went once a week. Since then I go to PT twice a week. The PT place I go to now has a vacuum type machine that lifts the skin to promote fluid movement. They taught me how to do Manual Lymph Drainage massage which I do several times a day.

I've been doing what I am told to do but basically there has been no improvement in the Lymphedema. Does anyone have any comments or suggestions?