Hi- I had a Neck Dissection in January of 2013. I still have Lymphedema of the both face and neck, along with areas that are either numb, or hyper-sensitive. I went to 3 Physical Therapists before I could find one who was even willing to work on the affected area (most were trained in the arm/breast area, and I appreciated that they didn't use me as a "guinea pig" to practice on). The PT I finally found was good, and we keep trying new therapies together. The message is, it may take some time and leg work, but if you go to someone, and after 2-3 visits, your gut is telling you that they really don't know what they're doing, then they most likely don't. If possible, get in touch with a Cancer Center, and see if they can refer you to someone in your area, or if you can to there for treatment.


Stage 4: Mid-line BOT primary; Left Lymph Node 4-5cm HPV+
Chemo/Rad 10/08/12; 3 big doses cisplatin
Updated 10/16 refusing Cisplatin; due to side effects
Considering Carboplatin; discussing with doctors.
Corp. Trainer- South New Jersey
Life is What Happens When You're Busy Making Other Plans.