 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | DavidCPA began this discussion long ago and Phoenix Tears and RSO are virtually the same dicsussion. When all conventional options have been exhausted, these discussions are what take place. I am in heart failure, kidney failure, lung failure and brain failure. Conventional treatment abandoned me and sent me home to die back in 2009. I don't bring it up here more out of respect for Brian and OCF.
Didier, message me or email me and we can start this dialogue separately. Forcing people to die after exhausting treatment options isn't something I will ever choose, for me or for anyone. Much of what I have tried is now being used at places like MSK and MDA. I consider them leaders in this war.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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