Just wanted to add my ten cents worth because this is a topic close to my heart:)

I heard a talk given by an RO some months ago where he said that a sensitive stinging tongue can be a problem after RT and can last a year or so. Unrelated to that I get sensitivity where the native tongue joins my flap. Not always but often.

Toothpaste can be diabolical. I have found that Colgates Milk Teeth paste is gentle on the mouth but alas have been forced to use NeutraFluor since radiation. This does sting but not as much as regular toothpastes.

Milky products are very soothing. If I get too adventurous and get "stung" I reach for the ice cream, a habit that has made me put back on some of the weight I lost during surgery and RT. In my case that is not a good thing because I am fairly heavy.


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.