Can't take the spices - 12-14-2014 04:02 AM
Hi, friends!
This may seem strange, because it does to me, but over the past several months I have been finding my tongue to be much more sensitive to spices. Also, I sometimes get an unbelievably sharp pain in my salivary glands when I eat and the saliva is trying to come out. These are the little things that worry me and I know that I'm not alone.
I used to love hot and spicy food before OC and after my first round, I could eventually return to them since my taste buds and salivary glands were spared since I did not need chemoradiation the first round.
The strange this is that I am 26 months post-treatment (thank goodness) and I can't handle a lot of foods. Some are obvious, but some are not. For example, I cannot tolerate the following foods: ketchup, tomato sauce, most salad dressings (even Blue Cheese/Ranch), plain Kosher hot dogs, citrus, too much cinnamon tastes like a "Fireball", etc. Regular toothpaste and mouthwash (without alcohol) KILLS me, so I have to use my kid's toothpaste and/or my prescription high-fluoride toothpaste, as well as kids' mouthwash (which is also tough to take).
Also, I've been eating a lot of salads (with tender lettuce, cucumber, baby carrots, and grape tomatoes, sometimes beets) and I find that eating food that requires a lot of chewing not only makes my tongue sore (at the surgical site, but it seems to irritate the entire surface of my tongue. I feel badly complaining about this on the forum because there are lots of people here who are NPO or cannot eat but a small selection of foods. It's just that even though I have had tongue cancer and tonsillar cancer, I have been a compulsive overeater/food addict my entire life. I have been up and down the scale 80-100 pounds more times than I wish to count. I have been in and out of Overeaters Anonymous and have had periods of success and then I would leave and gain all the weight back, with interest.
Despite having these cancers, I have approached my top weight. I mean, who gains 50 pounds after recovering from surgery and chemoradiation? A food addict/compulsive overeater does! I know that this weight gain increases my risk for cancer among a plethora of other diseases/conditions and I am grateful to say that I am working with a sponsor and going to meetings 3 times a week.
My food plan does not include flour or sugar, so a lot of the "easy to eat foods" are not on my plan of eating. My sponsor knows that I have to work within my own limitations and there are plenty of ways to prepare the food so that it will be more gentle on my tongue/throat. I was just trying to do it the way I used to (it's only been nearly a month) and this is likely the source of my surgical site pain, but the spicy intolerance is another thing altogether.
I just wanted to give a little bit of background about me and my food problem, let alone having had oral cancer twice.
Since my doctor visits have been getting spread farther apart, I often forget to bring up the sensitivity issue up. I ALWAYS took a 5-subject notebook to ALL of my appointments...for every type of medical professional. I would write notes/questions down ahead of time and make sure that they were answered before I left the office, but I admit to getting lax on that over the past 6 months. I will start doing it again.
I apologize for the rambling nature of this post, but I guess I'm wondering why this is happening NOW (the sensitivity) and if anyone else has experienced something similar.
Thanks for listening.
Love in OCF,
Kerri
This may seem strange, because it does to me, but over the past several months I have been finding my tongue to be much more sensitive to spices. Also, I sometimes get an unbelievably sharp pain in my salivary glands when I eat and the saliva is trying to come out. These are the little things that worry me and I know that I'm not alone.
I used to love hot and spicy food before OC and after my first round, I could eventually return to them since my taste buds and salivary glands were spared since I did not need chemoradiation the first round.
The strange this is that I am 26 months post-treatment (thank goodness) and I can't handle a lot of foods. Some are obvious, but some are not. For example, I cannot tolerate the following foods: ketchup, tomato sauce, most salad dressings (even Blue Cheese/Ranch), plain Kosher hot dogs, citrus, too much cinnamon tastes like a "Fireball", etc. Regular toothpaste and mouthwash (without alcohol) KILLS me, so I have to use my kid's toothpaste and/or my prescription high-fluoride toothpaste, as well as kids' mouthwash (which is also tough to take).
Also, I've been eating a lot of salads (with tender lettuce, cucumber, baby carrots, and grape tomatoes, sometimes beets) and I find that eating food that requires a lot of chewing not only makes my tongue sore (at the surgical site, but it seems to irritate the entire surface of my tongue. I feel badly complaining about this on the forum because there are lots of people here who are NPO or cannot eat but a small selection of foods. It's just that even though I have had tongue cancer and tonsillar cancer, I have been a compulsive overeater/food addict my entire life. I have been up and down the scale 80-100 pounds more times than I wish to count. I have been in and out of Overeaters Anonymous and have had periods of success and then I would leave and gain all the weight back, with interest.
Despite having these cancers, I have approached my top weight. I mean, who gains 50 pounds after recovering from surgery and chemoradiation? A food addict/compulsive overeater does! I know that this weight gain increases my risk for cancer among a plethora of other diseases/conditions and I am grateful to say that I am working with a sponsor and going to meetings 3 times a week.
My food plan does not include flour or sugar, so a lot of the "easy to eat foods" are not on my plan of eating. My sponsor knows that I have to work within my own limitations and there are plenty of ways to prepare the food so that it will be more gentle on my tongue/throat. I was just trying to do it the way I used to (it's only been nearly a month) and this is likely the source of my surgical site pain, but the spicy intolerance is another thing altogether.
I just wanted to give a little bit of background about me and my food problem, let alone having had oral cancer twice.
Since my doctor visits have been getting spread farther apart, I often forget to bring up the sensitivity issue up. I ALWAYS took a 5-subject notebook to ALL of my appointments...for every type of medical professional. I would write notes/questions down ahead of time and make sure that they were answered before I left the office, but I admit to getting lax on that over the past 6 months. I will start doing it again.
I apologize for the rambling nature of this post, but I guess I'm wondering why this is happening NOW (the sensitivity) and if anyone else has experienced something similar.
Thanks for listening.
Love in OCF,
Kerri