Hi Cheri- I'm only a couple weeks ahead of you and I can still remember the day we heard ..."it's cancer". We had to say it out loud to each other a bunch of times just to make it real. My husband and I did and continue to focus on what we heard from the beginning...." This is going to be difficult, but at the end your looking at a cure" . My husband took off a week after surgery and plans on taking off 3 more weeks at the end of radiation and right after radiation ends. This may be optimistic but that's what we're going with. He's finished day 12 of radiation and still eating and drinking without a feeding tube thanks to the drug combination he's taking. We make the most out of the weekends while he is still feeling okay.

Someone earlier in this thread talked about trusting the doctors, I really struggle with that as his care giver. He goes right along without question. This forum is fabulous but also a bit scary. I'm beginning to understand that everyone has their own journey and although sometimes I'm reading about the worst, I work hard to think the best. Good luck and I'll add you to my prayers!


Maura
Working caregiver of husband Don ,56yrs, non smoker, casual drinker
6/14 DX squamous cell carcinoma on base of tongue, HPV positive
8/28 Radical neck dissection w/ removal of 31 lymph nodes and partial pharyngectomy T2 w/ MET to lymph node
8/30 emergency surgery to cauterize bleeders in throat
10/1 Began 1st of 30 tomotherapy
11/14 end of radiation