| OP   Platinum Member (300+ posts) 
 Joined:  Nov 2009 Posts: 493 |  Update:  I had the 11 hour surgery on April 9, was in the hospital for a week, then was transferred to a skilled nursing facility for rehab.  I had a detour and had to return to the hospital for 5 days for a MRSA infection.  I was in the rehab center until July 11, and have been home since then.  I have a feeding tube and a trach.  I see a visiting nurse now once a week and an SLP twice a week.  I don't think that I will be ever able to eat normally, but I still have my vocal chords (or "vocal folds" as my SLP says), and I am able to say some short phrases and some words.  I have a portable suction machine and a machine with moist air.  I also have a hospital bed, so I can keep my head raised.  The next step will be trying to use a Passy-Muir valve to help with my speech.  I am trying to speak as much as I can, without having to write everything down.  I really like my speech guy.  It has been really hard (and still is) but I am hanging in there, even though I get tired.   Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV.  Left hemi-gloss. and left selec.  neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09  Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13.  It's back: base of tongue, very invasive
 surgery involving lifestyle changes.    2/14:  Now speaking w/Passey-Muir valve.  Considering a swallow study.  Grateful to be alive.
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