OP Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | Well, option one is not an option, I am afraid. The condition of my mouth and the invasiveness of the tumor make that impossible. Now I have two options. One is to do nothing and essentially give up. The other involves very invasive surgery which would also involve some major lifestyle changes. I would have a permanent feeding tube, and a permanent trache. I am not sure that I would ever be able to eat or speak normally again. I know that there are others on here who have faced similar challenges. I would like to know how you coped and are coping with them. I am not ready to totally give up yet. I have a new granddaughter due in April, and I would like to be part of her life if possible.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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