Notreadyforthis,

Just so you now and hopefully you can share with your boyfriend, I was told less than 25% with or without the surgery. I had 2 known nodes on scans but both in level 1and the team decided to hold off on the surgery and save it for a recurrence salvage surgery to give me a year after that. The 50% number is really good! It would get a baseball player into the hall of fame. I remember telling my team that even 25% would be all star level.

As far as the 2 years, that is also a guess, albeit a highly educated and experienced one. I have been told by several doctors I had days, weeks and months left. At one point I was told any hour for many weeks. That was almost 2 years ago. No one really knows and living in the moment is my motto now.

I use statistics a lot in life. My focus has been using historical data to ask questions, not provide concrete answers.

Grab some coffee and hang out on the main OCF site if you want some science based information. It's much more realistic and you can be assured it's been reviewed by people with science based minds, not just random Internet craziness.

There are many of us around here that would also welcome any personal messages or emails for more personal or more private dialogue with your boyfriend. Sometimes, especially in the beginning, it is difficult to open up and even harder to ask questions when it's all so new. Anything we can do to help each other, that's why we're here.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023