 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Notreadyforthis,
Unfortunately for many of us, we get passed around while the cancer spreads and end up State IV. It's too common.
I'm really sorry you and your boyfriend are facing this but know many people have made it through this. Disfigurement must be rough, but life saving measures are what it's all about.
I'm sure your boyfriend will begin talking with you about some of this. For some of us, the initial shock has to be processed as the treatment plan is developed. I hope the Mayo or another Comprehensive Cancer Center is the treatment choice. With more advanced cases like this, you want experience and the latest treatment options.
Best wishes for the best possible outcome.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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