Hi Paul, thanks for responding,
Yes i have been to most of those, i have seen so many specialists i have had a full cardiac work up i am on my final cardiac test right now i have been wearing a cardiac monitor for two weeks its sent direct every day to my dr...i have done stress tests been tested for pheochromocytoma 3 times mri's mra's all negative so far, i have no permanent damage from the BP but i know after my TIA that i'm just playing for time, i currently see a specialist in NYC hes a published hypertension specialist hes currently not sure what to do, i have to wear a BP cuff for 24 hours again just to prove that when im not stressed out my bp is too low...i'm running around 80/50 for the last two days...very hard to function.

Yeah the problem i have right now is the dead bone in my mouth is at a stage they hope can be shaved down if we leave it too long i will end up loosing my jaw....it's early days for me i have to hope a plan can be drawn up some how they can help me

crazy old life


Dx SCC stage 4,on 10/9/2007
9/24/2007 started 7 weeks radiation 3 rounds of cisplatin given at week 1 week 4 week 7
Pet scans show cancer free
no saliva
no taste
11/11/11 started having BP issues, no diagnosis yet suspect Baroreflex Failure
2/10/2014 12 teeth removed HBO x60 healed well except for 2 sides
April 2014 started to get saliva back
8/30/2014 DX osteoradionecrosis of the jaw waiting on surgery