Thank you for your responses sometimes its just nice to know your not the only one.
I did get very hopeful when i learned about the Rheos System, but if you've had neck radiation you don't qualify for the study, fingers crossed someone will be able to help.
Dx SCC stage 4,on 10/9/2007
9/24/2007 started 7 weeks radiation 3 rounds of cisplatin given at week 1 week 4 week 7
Pet scans show cancer free
no saliva
no taste
11/11/11 started having BP issues, no diagnosis yet suspect Baroreflex Failure
2/10/2014 12 teeth removed HBO x60 healed well except for 2 sides
April 2014 started to get saliva back
8/30/2014 DX osteoradionecrosis of the jaw waiting on surgery
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