Antibiotics have significantly decreased symptoms - less pain, improved eating & jaw opening.

I just made an appt with Dr. Urken in New York, in addition to Dana-Farber Institute consult. We can travel to New York city or Boston.

I am still not certain what type of specialists to seek out... will ask this directly to our local team. I received a PM from someone with ORN for years that is under conservative tx (HBOT & repeated debridement with craniofacial/plastic surgeon).

CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin.
1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED
Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016