 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I'm sorry to hear your husband's news, Lottie. I can imagine just thinking of what may be ahead is bringing back some of the worst memories from the days of treatment.
The back teeth in/out has been debated for years and some doctors leaning one way have even changed their minds of late. There's no guarantees in any of this, unfortunately. There have been strides made in treating ORN as well. Perhaps a second or even third opinion might be justified, if it gives you peace of mind. Just keep things progressing as it can be hard to stop if not addressed as soon as possible.
As far as outcomes, different people have experienced different results. I have seen some with exposed bone completely resolve within months.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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