OP Supporting Member (50+ posts) Joined: Jun 2014 Posts: 86 | [quote=Anne-Marie]Hi AK - So glad you found this great place to be. Everyone here helped my son and me when he was at the same place. My son had a sore under his tongue, left side for about 6 months before he went to a doctor who referred him to an oral surgeon and then a Maxillofacial surgeon. It was a Stage 2 and he was treated with surgery and radiation and is doing fine now 7 years later. It helps to have someone else go with you when you see the doctors so that they can help you and your brother remember what was said or take notes. It does help to read up on everything on the main pages, especially where it says "Diagnosis" and can help you formulate questions for the doctors or for anyone here. Hope everything goes well with your appointment today. Check back often and let us know how your brother is doing. [/quote]
i am also so glad to find this great place! I am so glad to hear that your son is doing fine. My brother has it on his right side of the tongue. I see that your son removed 1/6 of his tongue. Did he have to do speech therapy after that? Did he have to use the Maxiofacial surgeon? Also, my brother is only 22 so he is dissapointed that he wont be able to drink alcohol again. Does your son ever drink now? if these questions are too personal please do not feel like you have to answer them.
22 YO Brother Dx 6/17/14 w. SCC R Lateral tongue CT scan clear LN 6/20/14 HPV-, non-smoker R tongue, right hemiglossectomy Surgery 6/24/14 (Not reoccurrence but went to NCCC instead R neck dissection, tracheostomy, radial free flap, R tongue dissection surg 8/11/14 PT1N2B.3 positive lymph nodes out of 13 Extranodal extension present 9-15-14 IMRT (35x) & Cisplatin (2x) begun 10-21-14 peg in. 10-31-14 1 round of carboplatin 11-4-14 IMRT rx comp 3-27-15 Recurrent tumor in lymph node, L neck diss. 10-29-15 brother passed away, 23 yrs old
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