Hi KimberlyAnn,

Welcome to OCF! Very sorry you joined the group that nobody wants to be in.

I was 46 when I heard the news and had no risk factors. I was stage 1, and although I had a few bumps in the road, I'm still her 9 years later. Finding a local support for just head and neck cancer is hard. Some hospitals have them, but not too many. Seeking an oncology psychiatrist is a good idea (I wish I had). The American Cancer Society or the Cancer Support Community may have some general cancer support groups in your area. I have found that the support of the OCF forum is fantastic - it puts you in touch with folks all over the world you have already been in your shoes, plus it is available 24x7. We are here to help you and your family get through this.

UPMC is one of the top rated hospital for head and neck cancer and I'm glad to hear you are going there this week. In addition to the OCF Support Forum, the OCF main website pages have a lot of information on OC - read the info and make a list of questions to ask your doctor. I hope you have someone to go with you - have them take notes.

Wishing you the best!


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)