This is SO hard but try not to worry. The unknown is so very scary because our minds naturally fill in the blanks. What you have been told so far is certainly concerning but it sounds like you are taking the proper steps. The other thing I remember is that it seemed like things were moving too slowly. Looking back at my experience and the shared experiences with the 6 people I have walked through treatment with, things just take time. At every step in this thing, every doc and every tech is doing their best to not make a mistake and that takes time. Find out what you are up against, your options and then act on that.

This board is a great place to vent, get advice and encouragement. Prayers headed your way.