It seems like the usual reaction to the first mention of a PEG tube is "No." That was my reaction a month ago too. But my primary care physician, my ENT, the head and neck surgeon, hematology oncologist, and radiation oncologist were all adamant that it is better to have it and not need it than to need it and not have it. The final opinion came from my sister - a registered nurse for over 25 years. She said "absolutely get it." I finally realized that I am not seeing all these doctors and asking them to help me save my life just so I can ignore their advice. So I swallowed my natural inclination toward stubbornness and got the PEG. I am not sorry I did so, although I'm only about a third through my rads and chemo and I only use it for hydration so far.

Listen to your doctors (and your sister if she is a nurse). You may never have gone through this before, and you don't like the idea of the thing, but they have helped patients through it hundreds of times. They really do know what they are talking about.


2/2014 SCC T4aN2bM0 HPV+ Tonsil/BOT
3/3/2014 PEG and port
3/10/2014 Chemoradiation therapy begins 260 mg Cisplatin x3, 2.12 Gy rads x33
4/23/2014 Final Cisplatin infusion
4/25/2014 Final radiation treatment
7/17/2014 PET scan. Lymph nodes clear. Primary tumor reduced both size and SUV (borderline hypermetabolic) so it's inconclusive.
8/2/2014 PEG tube removed.
11/24/2014 Saw MO, RO, ENT, and Head & Neck Surg. over past 10 days - all agree no recurrence but enhanced surveillance will continue.