I hope you decided on the PEG. My husband is the affected person - his doctor pretty much insisted he get one with his radiation. Hubby insisted he wouldn't be using it, but did pretty much right away. It made a HUGE difference.

I called my husband from a bus in Bermuda last spring. The guy sitting next to me heard me mention the doctor in Boston -- said his brother had also seen him. I asked him how his brother was doing - unfortunately he died - partly from complications due to his refusal to get the PEG.

My husband did focus on proper eating ASAP and was able to have it removed in almost record time.

Husband is patient. Diag 5/10/12 - Stage IVB.
Squamous cell carcinoma left tonsil/base of tongue.
5/30/12 starts 3 cycles of cisplatin, 5fu, taxol.
Wkly carboplatin + 35 radiation done 10/2/2012.
6/25/13 -Robotic surgery part of base of tongue removed; radical neck dissection.
12 of 15 margins were disease positive.
Took Capsol-T (green tea extract) until 11/12/13
HER2 biomarker present - 40MG Gilotref start 11/12/13; restarted at 20mg 1/20/14.
Tired, cranky, otherwise hungry, healthy.