Kathy,

Sorry to hear about your husband's diagnosis and that you both have many health issues. What lies ahead will not be easy and your concerns about your health and mobility may be a sign you need to rally your resources around you. From what I am hearing, you are already overwhelmed and the journey is going to get a lot rougher for a while.

Do you have a network of family and friends that you can start asking for help? This is the time to learn a lot of things as Tony suggests but without help, you may never find the time, given all the things going on now.

Do you have adequate insurance for things like home health care? Now is the time to assess your needs, both immediate and short term, as the treatment will be very difficult. From the picture you have painted, I don't believe you will be able to do this alone.

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023