Welcome to OCF! You have come to the right place for info and support.

What you can do now to prepare is to begin building a list of people to help you. Anyone who offers to help, tell them when the time comes you will let them know what they can do. Write down their name and contact info and a couple suggestions of what they can help with. Most people want to help but dont know what to do so you will need to give them tasks. It could be something as small as taking your child to the playground or library for story-time or doing a load of laundry, making a meal for your family, picking up some groceries, even walking the dog (if you have one) is helpful.

Take a biz card from every doctor you see and staple them to the inside of a folder. This will help you to easily find the right phone number if you ever are in an emergency situation down the road. Plus everyone is in the same place so much easier for others to call the doc too. Being organized will be a huge help getting your family thru this.

Your husband should see a dentist and get a complete check up. Any questionable teeth need to be taken care of now before any treatment begins. He probably will need flouride trays made so get started with making the appointment right away.

Your husband will need a full blood test including thyroid and testosterone levels. This must be done prior to any treatment starting to get pre-treatment levels.

Call the American Cancer Society and ask for help. They can give you up to $300 to help with transportation costs, prescriptions, etc. They also have a volunteer driver program that may be helpful. All this takes time to set up so do it right away. If you can get a driver to take your husband to one of his upcoming appointments it will help take the weight off your shoulders. This is especially helpful when getting radiation treatments. Having someone drive him even once a week is a huge help! This would give you a small break which is very important. Make sure you are good to yourself thru all of this. Taking time just for you is important so dont get so wrapped up in doing so much for everyone else and forget yourself. Being a caregiver is a tough job, full of stress and you will need a break once in a while.

Best wishes.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile