david,
I have to say that the thickened fluids and the neck exercises have really helped...At least that is the way it feels, much less aspirating, not gone but significantly better. I use a product called simplythick in most of the fluid I drink. Not coffee or beer though. You can find it on line.
Like Ed, I am learning to deal with it,bit by bit
If you find any wizards at UCLA let me know. We all have to find the solutions on these tough ones.
You can PM me and I will give you more info on the thickening routine.
Steve
70 male, athlete...again SSC of undetermined orgin , early july 09 40 tx radiation, 8 chemo cisplatin and ebuterx finished TX in mid Sept 09 Clear at the 6 year mark! Back to swimming, biking and running! just a tad slower never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
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