Hi David, we have similar problems and History. I am about four and one half years past TX. I too have swallowing problems. I had pneumonia several times over the last year, last time the light went on and they did a swallowing test ( Mission in OC) Bingo!Radiation damage to my neck has my larynx not moving up...aspiration pneumonia. So they immediately put me on thickeners for my fluid. Actually I do not use it for coffee or beer!It works pretty well and I aspirate significantly less, maybe even 90% less. I am also doing some neck exercises. Specifically, I lie on my back and try to look at my toes, very very hard to do for me anyway. I am a bit freaked out over it as I like you do not want to go back on a tube. I think for now I am OK. I do wonder as I get older though!I am 63 now.
So, I am just being diligent about the thickener and exercise and will keep moving forward. I would be quite interested to see what path your docs send you on
Steve
70 male, athlete...again SSC of undetermined orgin , early july 09 40 tx radiation, 8 chemo cisplatin and ebuterx finished TX in mid Sept 09 Clear at the 6 year mark! Back to swimming, biking and running! just a tad slower never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
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