David, find you the right type of doctor to address this. They are bouncing you around because they truly don't know what to do. You have many options ahead of you but first must feel comfortable with the answers to your questions. A larynx specialist/surgeon can give you the most likely case for the future but not the timing. I've dealt with this for 7 years although pneumonia three times this season. It has resolved many times with minimal treatment but this time I actually had to see a doctor and get an X-ray so he would feel better.

Don't worry about the future and what may happen just enjoy today while you gather more info. There are exercises to do based on what is wrong. My epiglottis doesn't lift on one side and the opposite vocal cord doesn't always activate. I hack in food for hours after eating. I change textures often to avoid the seepage into the lungs. My voice seldom works from everything pooling up in the voice box. If I would have taken my surgeon's advice I would have been a laryngectomee years ago. I personally didn't think it was time and still don't. I contacted a friend who is a voice coach for singers and came up with glottal exercises to crisply start the lifer. I also found ways to forcefully start the vocal cords by starting the noise slightly before I talk. Learn the biomechanics and you will find strategies that work.

Swallowing is something that the more you understand about it, the better you can manage the little differences. Ironically, deficits today may be fine tomorrow.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023