OP  Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 Likes: 1 | Ed, that's tremendous info and great advice. I thank you.
I put in a call to my RO today and spoke with her nurse, who as much as anyone got me through my treatment back then. She's going to speak to the doc on Monday. I have confidence they'll put me onto the right people, of whom I have no doubt there are many in this town. Among UCLA, USC and Cedars Sinai Hosp I'm sure to find someone who can zero in on this.
Many thanks for the good words as always.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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