hello K,

This sort of post describes the tragedy of cancer. Many here battle on fighting recurrence. Having fought the battles for a decade makes you more qualified than nearly all here about what treatments are available and over the years you have had discussions with many different experts.

You are on target that hospice is an organization that needs to be part of your network of advisers along with the doctors and other care providers. Hospice is a service directly focused on servicing your needs and is independent of a given facility whether it be your own home, a care home, hospital, or wherever.

They are there to provide expertise for those having to face quality of life and end of life scenarios in the foreseeable future not some distant far off time.

One of their main goals is to advise how ensuring you and those around you are comfortable and converse on the typical topics one faces.

You are encouraged to contact them anytime and earlier is better as it allows more time to establish the relationship and draw on them as you feel the need.

I'm sure others here have direct knowledge and experience with hospice and will offer their perspective.

You are going to need to seek medical doctors to obtain your range of options relative to managing the cancer growth. Pray God has something that can reduce the tumor to lessen the air restriction.

Don


Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4