Have you looked outside your local CCC? Is it possible to get a second opinion? At a different location. PaulB has had somewhere in the range of 6-7 recurrences, they have operated given him major rads and chemo, and done more operations, and then proton therapy. I know someone else who did the same. There are a few clinical trials but I suspect you need to be in a place where they are offered.

If you choose not to go this route then most hospitals have a hospice area. My friend did when she was dying. It was a large room with a large bathroom, and fridge and plenty of space for visitors. If there is no hospice care where you are then maybe look into the hospital as they would be best to manage your pain. At some point you lose interest in food and such so swallowing (assuming you are still taking food by mouth) becomes less of an issue, and air passes through even the smallest space, though at that point the meds they give you can help you sleep through it if that is what you want. My other friend liza went this route. She just basically wanted to be unconscious for it so that is what they did for her. Near the end breathing generally becomes slow and shallow, and really a dose of morphine will eventually stop even that.

I have been with patients when they died, and with my father as wel. He had pneumonia, as it progressed he became less conscious and aware, and his breathing slowed and he just stopped.

I am a fighter to the core so i would be the one telling you if this is confined still to your head and neck area, and you've only had one bout of radiation.. it can be redone. I would push for a second opinion somewhere else. Hugs and love and welcome.