OP Supporting Member (50+ posts) Joined: Dec 2013 Posts: 78 | Anne, Thank a bunch for your message full with warmth and confidence. Here are updates in my case,
Hey, Thanks for reply. i started with the planned three opinions before actual treatment takes place. Managed three NCI centers to see team of 5 members at each location. Visiting each team with my laptop, iPad and set of questions. Time frame is Dec 4 through Dec 30 to have all three opinions before actually I hit the road to treatment. Saved a lot of time by doing PET/CT once at first NCI center. Remaining two opinion will be easy to discuss since no time waste in repetitive endoscopy and PET/CT scans. I got all DVDs on hand to have an hour conversation wit two other NCI teams. Will keep you posted..
Special thanks to OCF and all respected members here for their support
Ankur, 37, T1N2M0 12/13: Biopsy and results 01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction Right neck dissection. 3/42 nodes positive and removed Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14) 03/14: 30 IMRT Appointments Started 3/17 (No CT) 04/14: Radiation treatments completed 07/14: PET - All Clear |