Hi! You sure found the right place for answers and support! Everyone here is awesome.

Mine is right side of tongue too. Like you, no smoking, etc. How old are you? Me, I am 38. Baffles docs when you don't fit the profile.

Hope you get results soon and a clear path to a treatment plan. Hang in there.

Kristen


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery