Its not easy is it? I cant believe you are still working, thats excellent! Sounds to me like you are doing very well so far.

For the neck, ask your doc for something stronger. I used prescription beta-Val cream but there are many equally as good you can get. Pat it on several times per day and let it soak in. Never use the cream before going into get zapped. But pat some on immediately afterwards. If the neck burns become open weeping sores its ok to cover them with some non stick gauze pads, be very cautious using tape on your neck. I used paper tape, one tiny piece to stick to a corner of the gauze pad so it wouldnt fall off.

Good luck!!!



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile