Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Rich it sounds like you are doing very well. Keep up the good work and push that nutrition and hydration. If you find you arent able to drink enough water (minimum 48 oz daily) or are beginning to skimp you can ask your doc for a prescription to get hydrated in the chemo lab. By getting 2 or 3 bags of saline 2 or 3 times per week can make a huge difference. You will feel really good after getting hydrated. I would crawl into the chemo lab and walk out a new person. If you get the prescription, make sure your doc gives you an ongoing open option to get it as many as 5 times a week. James did an excellent job with his nutrition and water intake! I really think it helped make this whole ordeal much easier on him. Let James be your role model and copy his routine.
Have you tried a humidifier at night? Also how about the "breathe right" nasal strips? Radiation damage to my sinuses caused me to have ongoing cold symptoms. I take liquid benedryl sometimes to help with the runny nose. It can be drying so use with caution if you have any dry mouth issues.
Overall it sounds like you are holding your own and doing pretty well. Keep up the good work.
-------Not to hijack your thread, Rich but I do want to make a quick reply to Curt and the feeding tube. Curt, not everyone gets a feeding tube. Some are able to manage their intake enough to sustain themselves thru their treatments and recovery. Its a touchy subject that in the past caused something we called The Peg Wars. Each side was adamant their choice was the only way to go. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |