OP Contributing Member (25+ posts) Joined: Sep 2013 Posts: 28 | So, I had no intention to start a PEG debate and was just sharing my experience but I think we've touched upon how different opinions amongst docs at different facilities are. I'll recount the story my MO told me about PEGs.
He said when they first came to market all the MOs thought it was a game changer and recommended everyone get one and "let the throat go on vacation and let everything go through the PEG". They thought the PEG would reduce so much suffering for patients. He said later on what they discovered was that they ended up with a whole lot of people who were never able to swallow again as a result. Basically their throats built up so much scar tissue and constricted that they were not able to undo the damage.
They stress to patients now (much like the knowledgeable people here) to use the PEG to supplement but use the throat muscles as much as possible. That being said my MO said 80% of patients get a PEG at some point. His usual timeline is week 4.
47, Non-smoker, moderate drinker 7/13 Found a lump on my neck 8/08/13 Dx HPV 16+ SCC right tonsil 8/19/13 Biopsy and neck dissection, 38 lymph nodes removed 2+ for cancer 9/23/13 Start 33 radiation treatments & 4 x Carboplatin/Taxol, 3 x Taxol only 11/07/13 Last radiation treatment 01/03/14 Post treatment CT scan looks good
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