well, another update. I have seen two pain specialist. Both are in agreement, Botox is a good solution. They both also said, this is not a common occurrence. I though my RO might be crazy when she said she has not seen this before. Then I thought, she does not treat 100s of H and N patients, so I will cut her a break.
Anyway, I hope to be on treatment in a couple of weeks. I will keep you all abreast of the outcome. Hope it works!!!!
Steve
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
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